Recently Sterling compiled a list of 20 experiences he would like to see and do before the very rare Wolfram Syndrome claims his vision and hearing, or worse.

Tragically his younger twin brothers Felix and Nelson face the same fate.

Following the reluctant release of the wish list, after parents Mark and Julie realised that “by ourselves we would never get Sterling the experiences he wants in time”, the family have been inundated with offers of support.

Kylie Wilson and her committee of friends set up a town wide raffle to help get the family to Hawaii, and judging by the initial uptake of tickets, Ms Wilson is looking to send them off in December, following a trip to the Gold Coast courtesy of the Kyle and Jackie O Show.

Meanwhile the community have come together as well.

Fire and Rescue NSW are going to make Sterling a firefighter for a day, while a trip down a mineshaft has also been booked in, and several joy flights in planes and jets have also been forthcoming from local operators.

A family trip to the Great Barrier Reef is also on the cards.

Mrs Rodda can’t believe how big the campaign has become, after initially thinking that Ms Wilson “was just planning a small raffle”, while the reality of a trip to Hawaii is starting to sink in for Sterling.

“It has been overwhelming for Mark and I, but we are starting to get on top of it,” Mrs Rodda said.

“Sterling has been really excited, I am sure that at times he has thought that these things wouldn’t actually happen, but now he is talking about Hawaii.

“The other upside to this is raising the awareness around Wolfram Syndrome, even a lot of doctors don’t know what it is.” 

Meanwhile tickets to Sterling’s Wish Ball go on sale on Monday morning, and are expected to sell out fast.

Tickets are $50 each, or fully catered corporate tables of eight are already available for $2000.