New battle for Bailon

AT JUST four years old, Bailon Johnson has endured more than any person should in a lifetime.

For the past 14 months, little Bailon and his dad Randy have been holed-up in Newcastle’s John Hunter Hospital, their fate alternating between hope and despair.

EVERLASTING LOVE: Tamworth dad Randy 
Johnson with his son Bailon, who is stuck in the fight of his life after being diagnosed with a second deadly tumour.

EVERLASTING LOVE: Tamworth dad Randy Johnson with his son Bailon, who is stuck in the fight of his life after being diagnosed with a second deadly tumour.

Hope floated last month when Bailon, who was diagnosed with a malignant tumour in his abdomen last October, was told he was in remission. But in the cruellest imaginable twist, doctors have now discovered a new tumour and give Bailon only a 10 per cent chance of survival.

Mr Johnson, a single father-of-four from Tamworth, is now pinning his hopes on a revolutionary new form of treatment to save his son.

“When they found the new tumour in his groin, I asked them what they thought and they were just going to send him home to be comfortable before he died,” Mr Johnson said.

“But I questioned them about a new trial that was starting and they said we could give it a go.

“We’re going to fight this until the end.”

The trial will last for 12 months and will see Bailon travel regularly between the Sydney Children’s Hospital and John Hunter.

A fresh round of scans will commence on June 21.

“Bailon doesn’t really understand what’s happening,” Mr Johnson said.

“He’s changed a lot in the last few weeks though.

“The pain of the new tumour is making him cranky and he’s having a lot of mood swings.”

Mr Johnson said he was “eternally grateful” to the people who had supported him while he has kept a bedside vigil at John Hunter.

A number of fundraising events are planned for the coming months.

To donate to the family, deposit funds through the Commonwealth Bank’s Bailon Kai Johnson account, BSB: 062 124, account number: 11182085.

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