THOUSANDS of dollars out of pocket, months of time lost with her family, friends and at work, eight courses of chemotherapy and seven weeks of radiotherapy later, Penny Plowman is waiting for the all-clear from breast cancer.
But the journey, like that of hundreds of other people with cancer in NSW, left her emotionally and physically exhausted as she experienced the frustration, the expense and the loneliness caused by having to travel away from home for radiotherapy.
She has joined the Cancer Council North West and called on the State Government to be more accountable to people with cancer and unblock the state’s clogged radiotherapy services, which is preventing people from accessing lifesaving treatment.
Her personal account is one of 268 collated by the Cancer Council earlier in this year during a call-in in an effort to paint a better picture of the difficulties faced by people requiring cancer treatment.
Of the callers, 15 per cent were from the Hunter-New England region.
Now their stories have been compiled into Roadblocks to Radiotherapy – stories behind the statistics, highlighting the issues that leave up to 5000 patients without treatment each year.
Limited availability of radiotherapy services forced several callers to travel hundreds of kilometres each day for treatment, pay for up to six weeks’ accommodation, or be saddled with bills for private treatment.
In the North West, 1100 people on average are diagnosed with cancer each year, and this is on the increase statewide.
However, with no radiotherapy treatment options in the region, many choose to forego treatment altogether for radical surgery that won’t remove them from local support networks.
Cancer Council North West manager Christine Roach said this patients’ perspective follows more than 16 radiotherapy-focused reports, 11 written or commissioned by NSW Health Department over the past decade.
“This unique report is the first patients’ perspective in a long line of reports looking at radiotherapy issues in NSW and sadly, the findings confirm what we already know,” she said.
Although half of the NSW population will develop cancer by the time they turn 85, patients needing radiotherapy are faced with roadblocks at every turn.
“It’s time for the Government to stop stalling and take seriously the recommendations made to them time and time again.
“We need to see a public radiotherapy centre established in our region, better financial support for patients, and planning that ensures that patients are able to access radiotherapy without undue hardship.”
The need for radiotherapy locally has been identified in the Tamworth Health Services Plan.
Hunter New England Health has applied to NSW Health to receive federal funding to build an integrated cancer care unit as part of the Tamworth hospital redevelopment.
HNEH cancer service director Dr Colum Smith said while it had advocated for enhancements to provide this service locally, the health service would be assessed in line with other priorities across NSW, as to when those linear accelerators came online and where they would be located.
“Hunter New England Health supports the provision of radiation therapy services at Tamworth and will continue to advocate for a future service in the region,” he said.
If you are currently undergoing radiotherapy treatment or require a copy of Cancer Council’s Understanding Your Rights book, contact the Cancer Council Helpline on 13 11 20.